I just wanted to write a little note. I can't believe that Harrison is 6 years old tomorrow. The 09/09/09!
He is doing wonderfully. We did have a really bad Winter where both my boys seemed to pick up cold after cold but we made it through and the weather is now getting warmer. He is due for his 5 month hospital visit in 2 weeks so hopefully fingers crossed that his bloods etc are good - stable I should say.
The Foundation is NOW OFFICIAL!!!!! We are Registered as a HEALTH PROMOTION CHARITY!!!! YAY!!!!! We are also endorsed as a tax deductible charity. Our Bank Accounts are now in place and we are hoping to start taking DONATIONS. All monies will go strictly towards BOR Syndrome awareness and research. I can't wait to start fundraising. It took me a long time to get this all approved and I am over the moon that it is all done.
I hope that everyone is well. Please add your info to our Research Project if you have not done so already. And take a look at the GUESTBOOK. I can't wait to read more entries from you all.
Best Wishes.
Fiona
