hello , my name is Morgane , Iam french !!!!
i don't speack english verry well so i hope you understand all i want to say ...
on 2006 my little girl was born .. her name's MAE-Ly .... she has BOR !
in France there is no foundation for help us .
She has two bilateral branchial fistulae, preauricular tags, one lop ear deformity, and she don't earth very well...
i'd like to know if you have seen special doctor for speak of your child??
thanks for your answers.
kiss
morgane
