thecainfoundation

Hi BOR Family,

Wow where do I begin......

Our little Charity is starting to come along in leaps and bounds now. We had our First Fundraising Committee Meeting last night and it was very successful. We now have quite a few ideas in the pipeline.

We are looking at having a Cup Cake stall at School in the next fortnight. We are also looking at having a Jelly Bean Guessing Comp at the School and a few local Kindergartens where our children go to.

There was talk of an end of School Year Christmas Disco in December ( I am just awaiting news on dates available). We have our BIG Annual Charity Golf Day in March 2010 and then our First Annual Charity Dinner in December 2010.

If anyone is interested in helping out you can simply organise to do the same or similar things in your community. Have a Cake Stall at your school and all monies are donated to The Cain Foundation. Maybe a Guessing Comp or a raffle????

We are in the need of donations at present!!!!

As we are starting to organise all these events we need to be putting deposits down and at present our bank account is VERY low! The more money we can raise the more awareness we can get out there. It's all about awareness.


I am in the process of publishing a BOR Syndrome Information Booklet which will be available to download from our site soon and we will have many of these printed that will be starting to be sent off to Doctors around Australia.

We are also looking a Sponsoring a Chip for BOR Syndrome next year.
The chip would be available in Iowa firstly where it will be made but will also be able to be accessed anywhere in the world. Once the chip is available to use, if someone with the presumed diagnosis of BOR wants genetic testing, they would send a sample of DNA to Iowa and we would run that sample against the chip. This should provide relatively quick turn-around-time and as I mentioned, probably be under $500 total. Once the testing has been completed, a report to the doctor/individual will be sent with results.

So this is where we are at at the moment. If anyone is interested in donation. Please go to the HOW TO HELP PAGE and go to DONATE. We need your help!

Fiona Cain